Part 6 of a seven-part series exploring how neurodivergent minds are understood through the lens of usefulness. The previous articles examined this question from historical, economic, diagnostic, and structural perspectives. This article takes a different approach. It describes what that dynamic feels like from the inside when it does not work.
Content
1. Introduction: Series Overview
This article forms part of a seven-part series examining how neurodivergent minds are understood through the lens of usefulness. The earlier articles explore that question from historical, economic, personal, diagnostic, and systemic perspectives.
This piece takes a different approach. It describes what that looks like from the inside when it does not work.
The series concludes with what remains when that framework fails: constructively, what, if anything, might be built in its place.
2. Competence Without Belonging
There is a version of autism that is often described as different, as a variation, as something that comes with strengths. This is not that version. This is what it feels like when it does not work.
The problem is not a lack of empathy. It is timing. I do feel things. I do care. But I cannot access that fast enough in real interaction. By the time I understand what someone is feeling, the moment has already passed. What should be instinctive becomes delayed, and what should be connection becomes reconstruction. Every interaction becomes something I have to process, label, and calculate. I do not move through it naturally. I move through it analytically. That is the gap. And it is not small.
Forming relationships is also slow. It can take years before someone feels like a friend, years before there is any sense of closeness or trust. Others seem to build that in weeks, forming strong, immediate connections that deepen quickly. That difference is difficult to reconcile because it means that by the time something begins to feel real on one side, it may already have moved on for the other.
Over time, that gap has consequences. I have had several long-term relationships. None of them lasted. They all ended in roughly the same place. The conclusion is always the same: I cannot meet the emotional expectations that most people associate with closeness. I do not read what needs to be read, and I do not respond in the way that feels natural to the other person. Over time, that creates distance. Not conflict. Distance. And distance, eventually, becomes separation.
3. Utility Without Joy
There is a particular kind of failure that comes from this. Not professional failure. Not financial failure. Something else. I have built systems used at a national scale. I have done work that matters, work that reaches millions of people. I have founded organisations, delivered infrastructure, and changed things in ways that are real and measurable. None of that touches the problem that matters most. I live in a large house. I sleep alone on a sofa. That is not a metaphor. It is the reality. The achievements are real. The loneliness is louder.
There is also a question of meaning underneath all of this. I do not see life as neutral. I do not see it as open-ended. I believe that a life has structure, that it has purpose, and that part of that purpose is to build and sustain a family. That belief has not gone away. In one sense, I have done what I set out to do. I have built things. I have created value. I have become someone capable of providing, of supporting others, of carrying responsibility.
But the part that matters most, the part that defines that role, is not there. I provide for a family that does not exist in the way I believe it should. I have children who move in and out of my life, and while those relationships matter, they are not the same as the thing I expected to build. So there is a contradiction at the centre of it.
I have become capable of fulfilling a role that I do not fully occupy. And because of that, success does not resolve anything. It often does the opposite. It creates a sense of distance between what exists and what was expected, between what has been achieved and what was supposed to matter. It does not feel like achievement: it feels like misalignment. That gap is not abstract; it defines how everything else is interpreted.
4. Success Without Fulfilment
It is difficult not to feel anger. Not abstract frustration, but something more direct. You can see people move through social environments with a kind of ease that is simply not available to you. They read each other in real time. They adjust, connect, recover, and repair without thinking about it. They belong without having to work out how. And you are left operating in the same environments, but without access to the same mechanisms. You are expected to function within systems that were not built for how your mind works, and when it does not work, the failure is read as yours. So you adapt. You learn. You mask.
Masking is often described as an adjustment. It is not. It is sustained compensation. It means continuously monitoring behaviour, controlling tone, managing expression, rehearsing responses, and analysing interactions as they happen. It means running a second layer of processing over everything, all of the time. From the outside, this can look like success. It can look like someone who is functioning, contributing, and participating. But the cost is not visible. And over time, that cost accumulates.
There is also the issue of emotional regulation. Reactions can be disproportionate, triggered by things that appear minor from the outside. In the moment, they do not feel minor. They feel immediate and overwhelming, and difficult to control. Afterwards, there is often a sense of disproportion, of having reacted in a way that does not match the situation. That creates a second problem, because it becomes easier to keep a distance from people than to risk exposing that volatility. The result is a constant tension between wanting closeness and maintaining distance.
This extends into everyday behaviour. Small disruptions to routine can create disproportionate discomfort, whether that is needing to follow a particular pattern, repeat a process, or use familiar objects in specific ways. These are not preferences in the usual sense. They are stabilising mechanisms, and when they are disrupted repeatedly, the effect compounds into anxiety that makes normal functioning harder.
5. The Limits of Adaptation
There is a deeper problem underneath all of this. It does not resolve with effort. It does not resolve with time. It does not resolve with “success”. You can improve at the edges. You can become more effective, more aware, and more capable of navigating situations that once felt impossible. But the underlying gap remains. The difference in how experience is processed, how people are read, how connection forms: that does not change.
This creates a kind of asymmetry that is difficult to explain. You can be highly competent in domains that matter to the world, while remaining fundamentally misaligned in the domain that matters most to you. You can solve complex problems, build systems, and deliver outcomes at scale, while still being unable to do something that most people take for granted: connect easily, intuitively, and in a way that feels mutual. That is not a contradiction. It is the reality.
There is also a difference in how this presents across people. In some cases, the support required is visible. It is immediate and recognised as such. Communication may be limited or absent. Independence may not be possible. The need is clear, and it is understood as a need for care.
In other cases, the profile looks very different. Cognitive ability may be high. Independence may appear intact. From the outside, it can look like functioning, capability, or even success.
But that does not remove the need for care. It changes it. The support required is not for basic functioning. It is for navigation, for interpretation, for stability in areas that are less visible but no less consequential. It is the difference between being able to operate in the world and being able to belong within it.
These are not equivalent experiences, but they are not reducible to a single scale either. Different needs do not cancel each other out. They exist in parallel.
6. The Problem Is Not Solved by Framing
There is a tendency to frame autism as a mix of strengths and difficulties, as though the two balance each other out. In some cases, that may be true. In others, it is not. Sometimes the strengths exist in domains that are publicly valued, while the difficulties exist in domains that define private life. The result is an imbalance that is not corrected by success. Because success does not solve loneliness. And it does not create belonging.
This is the part that is often missed. The problem is not simply that neurodivergent people are misunderstood. It is that the environments in which understanding would need to occur are not designed to support it, and the effort required to bridge that gap is not something most people are willing to take on. So the burden shifts. The individual adapts. The system remains. And the outcome is interpreted as functioning.
From the outside, it can look like things are working. From the inside, it can feel like something essential is missing. Not occasionally. Not intermittently. Continuously.
There is no clean resolution to this. No point at which the gap closes completely. No point at which effort converts into equivalence. There is only the ongoing reality of operating in systems that were not designed for how your mind works, and the ongoing cost of making that work as well as possible.
There is an older idea that you cannot belong to a system without becoming what that system requires. This is not a refusal. But it leads to a similar place.
This will be read in different ways. Some people will recognise it immediately, not because they agree with every detail, but because the underlying pattern is familiar. Others will see something else entirely, a justification, an excuse, or a failure being explained rather than accepted.
Some will read it as honesty. Some will read it as weakness. Some will read it as confirmation of what they already believed, whether that belief existed before reading this or not.
That is not something I can control. This is not written to persuade. It is not written to assign blame, nor to explain everything through a single lens. It is simply a description of how this feels from the inside when it does not work. If that aligns with what you already think, it will reinforce it. If it does not, it will not change your view.
7. Conclusion: What Remains
The question, then, is not whether autism can come with strengths. It can. The question is whether those strengths are enough to compensate for what is lost when connection does not come naturally. In some cases, they are not. And that is a reality that sits uncomfortably alongside more positive narratives, but it is nonetheless a reality.
This is what it looks like when it does not work. Not absence of ability. Not absence of effort. But absence of belonging.
There is no resolution to this. Which leaves a different question. Not whether it works, but what you do when it does not.
This question is explored further in: Choose to Build Your Own Meaning Anyway: Beyond the Question of Usefulness.
The history of Asperger’s reminds us how societies once judged human worth through usefulness. Lived experience reminds us why that question still matters. The later articles explore what happens when that framework breaks down and what follows.
This article is part of a series:
- Asperger’s Syndrome and the Question of Usefulness — Historical Origins
- Neurodiversity and the Question of Usefulness — modern economic narratives
- Lived Experience and the Question of Usefulness — personal realities
- The Spectrum Problem after The Question of Usefulness — diagnostic frameworks
- We Still Don’t Understand Neurodivergent Minds Even Beyond the Question of Usefulness — systemic perspective
- When Autism Doesn’t Work: The Human Cost of the Question of Usefulness — how it feels from the inside
- Choose to Build Your Own Meaning Anyway: Beyond the Question of Usefulness — constructive series finale
8. References
- Milton, D. (2012). On the ontological status of autism: The ‘double empathy problem’. Disability & Society.
- Hull, L. et al. (2017). Camouflaging in autism: A systematic review. Autism.
- Pearson, A. et al. (2020). The relationship between camouflaging and mental health. Autism in Adulthood.
- Nagel, T. (1974). What is it like to be a bat? The Philosophical Review.
- Horkan, W. (2026). The Hidden Costs of Masking: What Research and Autistic Voices Reveal.
https://horkan.com/2026/01/01/the-hidden-costs-of-masking-what-research-and-autistic-voices-reveal - Horkan, W. (2026). Can’t Understand Neurodivergent Thinking.
https://horkan.com/2026/03/01/cant-understand-neurodivergent-thinking